A testimonial by Cheryl D., a home care consumer in Pennsylvania:
At the age of 14, a cardiac arrest left my son Renzo with a severe
anoxic brain injury. For the last seven years, he has been completely
dependent on the help of direct-care workers. I pay at the higher end
of the wage scale ($10.50 - $15 per hour), but I can’t afford health
benefits for his workers.
Over the years, Renzo has seen more than 40 workers come and go. His
short-term memory is challenged. It’s not until he has had somebody for
two to three months that he can remember their name. And it takes
workers at least a month to understand his patterns of speech.
For every aide that comes in, I am the trainer. I have to teach them
how to help him eat through a straw, how to manage his toileting needs,
and how to help him therapeutically regain limited skills. He has never
really learned to use the augmentative communication device because he
has not had a consistent person to work with him long enough.
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